Suffering from a rare disease, Celine Dion postpones her tour

Singer Celine Dion has revealed that she suffers from stiff man syndrome, which causes muscle spasms that can be debilitating.

Celine Dion has revealed that she has been diagnosed with a rare neurological condition called stiff-man syndrome, which led her to postpone her spring 2023 European tour. Prior to her announcement on Thursday, the singer had already pushed back the tour from 2022, invoking at the time of ” health problems “.

As you know, I’ve always been an open book, and I wasn’t ready to say anything before, but I’m ready now. Dion said in an Instagram video posted Thursday.

It’s been really hard for me to deal with these challenges and to talk to people about the things that I’ve been through. Recently I was diagnosed with a very rare neurological disorder called “stiff man syndrome”, which affects around one in a million people. Although we are still learning about this rare disease, we now know that it is what caused all the spasms I had. »

In October 2021, Dion postponed the opening of his new residence in Las Vegas Due to ” severe and persistent muscle spasms which also forced the cancellation of her North American tour in January 2022. In April, she then postponed the European tour to spring 2023 due to ” health problems “. ” The good news is that I’m doing a little better. It’s going very slowly, and it’s very frustrating for me “, had then declared Dion without revealing his diagnosis.

According to the National Institute of Neurological Disorders and Stroke (NINDS), stiff-man syndrome is a rare neurological disorder. characterized by fluctuating muscular rigidity of the trunk and limbs and increased sensitivity to stimuli such as noise, touch, and emotional distress, which can trigger muscle spasms. Abnormal postures, often stooped and stiff, are characteristic of this disorder. Sufferers may be too disabled to walk or move around, or they may be afraid to leave their homes because street noises, such as the sound of a car horn, can trigger spasms and falls. The NINDS adds that the disease “ affects twice as many women as men “.

Unfortunately, these spasms affect all aspects of my daily life, sometimes causing difficulty when I walk and not allowing me to use my vocal cords to sing as I normally do. It pains me to say this today, it means that I will not be ready to resume my tour in Europe in February, Dion said Thursday. I have a great team of doctors working by my side to help me get better, and my precious children, who support me and give me hope. »

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Dion postponed the spring 2023 dates to spring 2024 and canceled eight of her summer 2023 concerts. Now her next concert is scheduled for August 26.

All I know how to do is sing, that’s what I’ve done all my life, and that’s what I love to do the mostadded Dion. I always give 100% when I do my concerts, but my condition does not allow me to do so. In order for me to join you again, I have no choice but to focus on my health, and I hope to be on the road to recovery. That’s my goal, and I’m doing everything I can to recover. »

A passage of Celine Dion was planned at the Festival des Vieilles Charrues on July 13, 2023, but was canceled. The six concerts scheduled at La Paris La Défense Arena from September 1 to 10, 2023 are currently being maintained.

Daniel Kreps

Translated by the editor

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